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Re: medtronic spinal cord stimulator
Posted by Jackie on 5/31/06

    On 5/31/06, Jackie wrote:
    Today my pain management and surgeon both want me to consider a scs. As I
    have been researching anything I can get my hands on I stumbled upon your
    experiences and this concerns me. I have had C5&6 cervial fusion, C2-7
    laminectomy, L5&6 discectomy, L5&SI 1 laminectomy. All my trips under the
    knife have not helped the pain from my neck to my toes. I have taken
    oxycotin, methadone, perecets, and fentanly patches with a morphine base
    drug. ALL have not helped my pain levels. My next step recomended is scs now
    I am concerned as I read your side effects and wonder where do I go? I do
    know prior to my first surgery c5&6 i have electrical jolts shooting from my
    neck down my arms and legs. The more I felt those shocks the more damage I
    did to my spinal cord. as my surgeon said I was a cough, a sneeze, a step
    away from being a paraplegic according to my surgeon. I am living proof
    today that the damage I did has never healed or returned no matter what I
    have done to work at regaining my losses. Your doc lied straight out to you!
    If you feel that shock with the slightest of movement you are cutting,
    piercing, pressing upon the spinal cord and any damage you do it will never
    ever repair itself back to the way it was. Even in the healing process you
    always leave a scar. I live it everyday. I just read on the morphine pump
    some cons also, the side effects are a risks also. When you had the scs
    implant did pain management reduce your pain medication? Did the scs ever
    work? I am still on the edge looking or help? I hope I have helped you to
    understand the losses from the shocks. jackie
    > On 5/31/06, Jackie wrote:
    >> On 5/20/06, debbie wrote:
    >>> On 5/20/06, debbie wrote:
    >>>> On 5/15/06, Darek Haupt wrote:
    >>>>> On 5/15/06, Darek Haupt wrote:
    >>>>>> On 5/08/06, janis wrote:
    >>>>>>> On 5/07/06, Michele wrote:
    >>>>>>>> On 4/19/06, Janis wrote:
    >>>>>>>>> Has any one had this implant turn on with out the remote
    >>>>>>>>> and causing stimulation through out the whole body? If so
    >>>>>>>>> could you please let me know by e-mailing me.
    >>>>>>>> nfler4@msn.com
    >>>>>>>> Janis,
    >>>>>>>>
    >>>>>>>> Yes I only had the scs for about 7 months but two different
    >>>>>>>> times in the middle of the night it shocked my whole body
    >>>>>>>> and I thought I was going to die I was able to move just
    >>>>>>>> enough to grab the remote and shut it off. I thought for
    >>>>>>>> sure I at least had nerve damage because it was like being
    >>>>>>>> stuck by lighting. O f course I called the doc the next day
    >>>>>>>> and he said it was no big deal (like I was being a big baby)
    >>>>>>>> and there is no way it can damage you. After all I went
    >>>>>>>> through with the scs I very much doubt that is the truth.
    >>>>>>>> You can see my post from 5/6/06. I believe he lied and
    >>>>>>>> changed his story about the scs all the time and now I need
    >>>>>>>> an MRI becasue my spinal surgeon (not the same person)
    >>>>>>>> believes that I have spinal cord damage from the wires. I
    >>>>>>>> am now wondering if and how I should go about getting a
    >>>>>>>> lawyer, Thank god I found this site and I would tell anyone
    >>>>>>>> to think it over very carefully before getting one. I am
    >>>>>>>> sure it helps some people (not enough to have it on the
    >>>>>>>> market) but at what cost, drugs are far more safer in my
    >>>>>>>> opinion.
    >>>>>>>>
    >>>>>>>>
    >>>>>>>> Michele
    >>>>>>>
    >>>>>>> Michele.
    >>>>>>> Could you please let me know your permanent nerve damage. Also
    >>>>>>> did you have the implant out and do you have the original
    >>>>>>> implant that they took out? I'll let you know about the legal
    >>>>>>> end.
    >>>>>>> Thank you for responding,
    >>>>>>> Janis
    >>>>>> I had the spinal cord stimulator implanted July 28, 05'. I had
    >>>>>> problems with the leads migrating away from my spinal cord and
    >>>>>> felt no stimulation. The surgeon went in a second time to correct
    >>>>>> the migration suturing the leads into the muscle. I then had a
    >>>>>> hematoma grow on my spinal cord and had SEVERE electric
    >>>>>> shockwaves going from my neck to my legs everytime I moved my
    >>>>>> head the slightest bit. The surgeon said I was close to being a
    >>>>>> paraplegic due to the growth but a major steriod treatment in the
    >>>>>> hospital for a third time rectified the situation. I continued to
    >>>>>> have erratic stimulation. The voltage was increased to widen the
    >>>>>> pain relief area but no go. The stimulator now only works on the
    >>>>>> left side and only when it wants to. I am having the stimulator
    >>>>>> removed this Thursday the 18th and after the healing period, my
    >>>>>> pain mgmt. doctor suggested that the next stage for my pain
    >>>>>> management in my back is the implantation of a morphine pump. I
    >>>>>> need info. from anyone who has had a morphine pump put in to tell
    >>>>>> me if the are better or worse.....is it uncomfortable to live
    >>>>>> with?....is it as obvious under the skin as the stimulator
    >>>>>> was?.....how is the pain relief? I would really appreciate any
    >>>>>> reply. Darek....my e-mail is dwhaupt@comcast.net THANKS

     
     

 
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