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Re: medtronic spinal cord stimulator
Posted by debbie on 8/10/07
On 3/18/07, Elizabeth Earles wrote: > My husband had medtronics spinal cord stimulator implanted 2 weeks ago. It > is in his hip. He hasn't had a problem with that so far, but he has got > shocked a couple of times when he wasn't supposed to. You all are scaring > me with your stories. Does anyone know anyone who's worked right? >> On 2/15/07, Stacey aka Crip Chick wrote: >>> On 1/28/07, janelle wrote: >>>> Hello. I am wondering if anyone had the pain pump implanted. I am >>>> hoping to hear some personal experineces before I make a decision. >>>> Please help. >>>> >>>> Thanks, >>>> Janelle >>> >>> Hello Janelle. >>> I Had the Medtronics Morphine Pump put into me around the 2nd week of >>> Decemeber 2006. I was origially going to go with the stimulator, but >>> being that I have a double curve in my spine, I was hugely concerned >>> this would cause problems. I was assured by the doctors office that it >>> would not, but I could even see the doubt in their eyes, or I was >>> looking for it :-p >>> My history, 35 female, former yoga instructor, 5'7 120 lb. got in a car >>> accident head on when I was 19, that is when my spine was injured, >>> finally gave out when I was 33 or so after two kids, TONS of weight >>> lifting, TONS of yoga and baiscally, ignoring all the pleas from my body >>> that it hurt. >>> So After I went ahead and had to go through the absolute hell of an >>> anterior interbody fusion at L5S1, it turned into a DISASTER!!! There >>> was tons of scar tissue build-up, beyond your wildest immagination and >>> also, the painfulest (sp?) part was that nerves were TRAPPED during the >>> fusion. >>> So after some 20 post surgies where I tried EVERY THING I could try with >>> the doctor to make me try and feel better, we started talking about the >>> SCS. I fought it because, as I said, I have scoliosis. He sent me home >>> with a video to watch on both the stimulator and the pump. When I >>> finally decided the time had come, I went for the pump and now, Feb 15, >>> 2007, I could not be a happier woman, first time in like 4 years! No >>> more oral medication!!! I am a little unhappy because the first time out >>> of the hospital the doctor filled it with pure Morphine like we >>> discussed, then his "dr"'s helper who takes care of all the "pump" >>> patiesnts told me on the next fill she would get a mix of cloinidine in >>> it with the morphine. I have no idea why, but whe decided this was a >>> great idea. Ever since we did that change, I have had light pain in all >>> the usual places. NOTHING LIKE BEFORE THOUGH, THANK GOD!!!!! So when I >>> go in in 2 weeks for my refill on the pump (which doesn't hurt AT >>> ALL!!!!) they are going back to pure morphine and we are not going to >>> mix with what isn't broken! >>> I hope I've helped you Janelle. I know I've scoured these sights every >>> time I get ready for any surgery, and any information I can gleam from >>> them and past patients always set's my mind at ease. >>> Take care! >>> Crip Chick! >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> On 1/19/07, Lee wrote: >>>>> Hello guy's >>>>> I had the Medtronics stimulator implanted on 8-18-2000. It seemed to >>>>> work ok with some relief for a couple of months when I went to turn >>>>> it on one morning and nothing would happen. They ended up charging >>>> my >>>>> insurance company and me to go in and do what was called a >>>> revision?? >>>>> Well it never helped again. After a few days my abdomen started to >>>>> turn bright red a swell with swelling and redness going around where >>>>> the leads were installed. I called my surgeon and was told to go to >>>>> the Hospital. I was told they were going to remove the stimulator >>>> and >>>>> install the pain pump. I TOLD them I paid for the stimulator so I >>>>> wanted it for myself to see what happened to it but when I woke from >>>>> surgury it was nowhere to be found. As you know when you are having >>>> a >>>>> Medtronics device installed they have a rep in the room to hide the >>>>> evidence. >>>>> I am now having problems with Medtronics pain pump. >>>>> Lee >>>>> >>>>> On 12/14/06, Larry Singleton wrote: >>>>>> On 12/14/06, Larry Singleton wrote: >>>>>> >>>>>> Re: MEDTRONICS SPINAL STIMULATOR >>>>>> Posted by Larry Singleton on 11/30/06 >>>>>> >>>>>> on 11/20/06, Larry Singleton wrote: >>>>>> >>>>>> I had the Medtronics pain stimulator installed in Jan of 2005, and >>>>>> from the very instant I got in recovery, the unit would not work >>>>>> properly. By that, I mean I had to position my body by either >>>>>> flexing or extending my lower back to get the unit to work at all. >>>>>> Also sometimes, it would hurt all the way up into my stomach and >>>>>> chest cavity. When the unit did that, the next 3 or 4 days felt >>>>>> like I had a severe stomach strain and my chest area hurt so bad it >>>>>> felt like I had broken ribs. I guess it was because the muscles in >>>>>> those areas were getting shocked by the unit and caused the pain. >>>>>> >>>>>> My Dr. told me that the wires just needed to scar into place. >>>>>> After another month, I saw my Dr. again, and he said that due to >>>>>> postering and positional problems of the leads, he needed to do a >>>>>> laminindectomy and install another set of leads that have paddles >>>>>> on the end of the wires to correct the problem. I also was >>>>>> beginning to have some pain in my right hip where he installed the >>>>>> Stimulator unit. >>>>>> >>>>>> He said that it would take approx. 4-6 weeks before he could put >>>>>> the new paddles in the thoracic area of my spine, which would be in >>>>>> late April. He installed the new leads on April 19,2006. On May >>>>>> the 17th, I was admitted into the hosptal with a blood pressure of >>>>>> 60 over 40 and was diagnosed with a Aureas MRSA staph infection and >>>>>> they had to take the battery out and perform a debridement of the >>>>>> skin, suncutaneous tissue, muscle and bone of my right hip. I got >>>>>> out 10 days later. >>>>>> >>>>>> The infectious disease Dr. put a PIC line in my right arm that went >>>>>> all the way in the vena cavae of my heart. I then had to do 2 IV >>>>>> injections a day for 3 months that took approx. 30-45 minutes for >>>>>> the medicine to completely dispense. In July they removed the PIC >>>>>> line and then told me I had to take more antibiotics for 42 more >>>>>> days to be sure that they totally got rid of the infection. >>>>>> >>>>>> On Aug. 31,2006 my back started getting warm again, and when I went >>>>>> in to see the Dr., they drained 3 large syringes of fluid out of my >>>>>> lower back and right side. I was put in the hospital again for the >>>>>> same infection, and this time the Dr. took the leads out that he >>>>>> left in, because the infection was spreading to my upper back. >>>>>> They did the same debridement procedure again from my thoracic area >>>>>> down to my hip and installed another PIC line in my arm for another >>>>>> 6 weeks of IV antibiotics at home. In Sept., they had to drain the >>>>>> fluid another time and said this was normal with the infection I >>>>>> had. >>>>>> >>>>>> Basially, the Dr. told me that because I am big boned in my spinal >>>>>> canal area, that the leads just could not scar into place, and he >>>>>> said that he could not do anything else for me. At this time, I >>>>>> also told him that where he installed the pain stimulator in my >>>>>> hip, that I now had a bony growth that was growing down the right >>>>>> side of my spine. They just said iy was from previous surgeries >>>>>> that I had where they took donor bone out to do a couple of >>>>>> fusions. I told him that the growth was not there until after the >>>>>> spine stimulator had been implanted. He blew me off. It is now >>>>>> appox. 3-4 inches long, approx. 3/4 to 1 inch wide and about 3/4 of >>>>>> an inch high. >>>>>> >>>>>> I have done some research on my own, and I would like to know if >>>>>> anybody else has gone through this same thing, and has anybody else >>>>>> had the stimulator installed in their hip instead of their side. >>>>>> The Medtronics literature says to never install the unit in the hip >>>>>> area. >>>>>> >>>>>> It is now Nov. 30th, and my new Dr's. are going to do what should >>>>>> have been done in the first place and fix 2 broken fusions that the >>>>>> other Dr. did not know about. >>>>>> >>>>>> Also, this happened at Texas Back Institute in Plano, Texas which I >>>>>> found out is owned 51 &37; by Medtronics. >>>>>> >>>>>> Ain't that something! >>>>>> >>>>>> Larry Singleton >>>>>> larsingle@aol.com >>>>>> >>>>>> >>>>>> On 11/28/06, Millard wrote: >>>>>>> 11/28/06 I am so relieved to hear someone else has had similar >>>>>>> problems with the stimulator I had an incident where the co. >>>>>>> rep. mishandled the programer and had a very sever shock and it >>>>>>> has left me with pain in new area and I think nerve damage the >>>>>>> Dr. also said it should resolve itself, well 5 yrs. later it >>>>>>> still the same. I would like to hear from anyone with similar >>>>>>> problem Millard >>>>>>> >>>>>>> On 5/08/06, janis wrote: >>>>>>>> On 5/07/06, Michele wrote: >>>>>>>>> On 4/19/06, Janis wrote: >>>>>>>>>> Has any one had this implant turn on with out the remote >>>>>>>>>> and causing stimulation through out the whole body? If so >>>>>>>>>> could you please let me know by e-mailing me. >>>>>>>>> nfler4@msn.com >>>>>>>>> Janis, >>>>>>>>> >>>>>>>>> Yes I only had the scs for about 7 months but two different >>>>>>>>> times in the middle of the night it shocked my whole body >>>>>>>>> and I thought I was going to die I was able to move just >>>>>>>>> enough to grab the remote and shut it off. I thought for >>>>>>>>> sure I at least had nerve damage because it was like being >>>>>>>>> stuck by lighting. O f course I called the doc the next day >>>>>>>>> and he said it was no big deal (like I was being a big baby) >>>>>>>>> and there is no way it can damage you. After all I went >>>>>>>>> through with the scs I very much doubt that is the truth. >>>>>>>>> You can see my post from 5/6/06. I believe he lied and >>>>>>>>> changed his story about the scs all the time and now I need >>>>>>>>> an MRI becasue my spinal surgeon (not the same person) >>>>>>>>> believes that I have spinal cord damage from the wires. I >>>>>>>>> am now wondering if and how I should go about getting a >>>>>>>>> lawyer, Thank god I found this site and I would tell anyone >>>>>>>>> to think it over very carefully before getting one. I am >>>>>>>>> sure it helps some people (not enough to have it on the >>>>>>>>> market) but at what cost, drugs are far more safer in my >>>>>>>>> opinion. >>>>>>>>> >>>>>>>>> >>>>>>>>> Michele >>>>>>>> >>>>>>>> Michele. >>>>>>>> Could you please let me know your permanent nerve damage. >>>>>>> Also >>>>>>>> did you have the implant out and do you have the original >>>>>>>> implant that they took out? I'll let you know about the legal >>>>>>>> end. >>>>>>>> Thank you for responding, >>>>>>>> Janis
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