Re: having problems with Boston Scientific's spinal cord st

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On 8/09/12, Randy Daniels wrote:
> On 6/22/12, Robin wrote:
>> On 6/22/12, Robin wrote:
>>> On 5/31/11, S.Stone wrote:
>>>> On 1/12/11, thomas p wrote:
>>>>> NO get that junk out of you as i did . the tril worked great like
>>>>> you said. but the shocking in my chest should have been lower back.
>>>>> if anyone has a good attorney we should start a class action suit !
>>>>> im waiting on a recall from the FDA the only thing that works on
>>>>> this thing is the money it puts in the company and doctors pocket !
>>>>> please contact me @ blackflag59@yahoo.com if you find a good
>>>>> attorney. they removed the cable that was poking out of my back and
>>>>> the batt, but left the paddle in my spine ! i feel very cheeeted.
>>>> So,Thomas P.,I wish I would have seen your post before I went back
>>>> for more surgical and wallet abuse.I had the percaneous lead replaced
>>>> with a paddle in my cervical region.Now the burning in my back is
>>>> gone.Unfortunately severe swelling,and more complications have
>>>> occurred.For instance,I got the SCS because of RSD in my left arm,and
>>>> I have coverage in my arm,but I also have coverage everywhere
>>>> else,lol.And as I am sure you know,it isn't comfortable in body parts
>>>> that aren't in pain.The BS rep (boston scientific) informed me that
>>>> she has never seen a cervical paddle affect someone in their
>>>> legs...Exact words,"You must be wired differently".Meaning that my
>>>> nerves are different than everyone else's.Uh,yeh,ok.So,I have taken
>>>> a "surgical sabbatical".I hate the fact that we have suffured so much
>>>> with no avail.Maybe one of the kind attorneys on this site will
>>>> respond to our posts! Stay strong Thomas.
>>
>> I have also have coverage from my neck down...My 1st surgery was June 6
>> 2011. I had severe pain after having the implant for 2 months, my pain
>> clinic Dr. said it was because I did not have my neck programmed yet...I
>> did not have any additional programming due to the severe pain! It
>> eventually stopped, then I had my program adjusted. There were issues that
>> I asked my Dr. about, such as shocking sinsations even with the stimulator
>> off, and off for days. The Dr. said that you still feel stimulation even
>> after it is off...and I learned early on, there's no use trying to explain
>> this does not feel right! Halloween day 2011, I was at the Dr's getting my
>> stimulator programming checked because it stopped working. An exray
>> revealed lead migration, also the wires were jumbled in my neck. The
>> shocking sensation became so intense I could not stand walking up and down
>> steps,,,even though the stimulator was off and would not work...still
>> never got a straight answer on that question either. Dec 6 2011, went
>> through a revision. My NeroSurgeon said I broke the anchors and was the
>> 1st patient she had even seen this happen with. This last surgery was
>> unreal pain! I was also in the neck brace etc. 3 times longer than after
>> the 1st surgery. I am having an odd pain, and the shocking sensations are
>> getting worse. Headaches, fatigue, vertigo, etc.
>> The pain and exspense that I have and still going through, I would never
>> have went through the surgery! And today I'm getting some frecky lil error
>> message...I have called my pain clinic Dr. and left messages (this was to
>> pay on my bill) but always get an answering machine. Same thing when I
>> have tried to get an appointment! So, here I am STILL on the same amount
>> of meds with a (before ins adjustments) 300,000.00 Boston Scientific SCS
>> that keeps shocking me every time I take a step!!!!!!!!!!!!!!!!!
>>
>> Had the Boston Scientific Spinal Cord Stimulator implanted June 4, 2012.
> No problems with trial stimulator. A month and a half later with the real
> MCCOY, both my feet,legs, arms and hands have gone numb. Had a cervical
> lumbar myleogram last of July, 2012. A nerve condiction study on both legs
> and am no better off than I was before these tests. Am getting worse each
> day. Can't get Dr's to communicate and help me. This is really scary when
> you know something is wrong and can't get answers. Have turned the
> stimulator off and still get sensation. Have just received approximately
> $65,000 in medical bulls for all this wonderful technology. I think hurting
> is worse than becoming parilized!!!!!!!!!!!!
>>

I had the SCS implanted January 2013. As a lot of you know the trial was great. 3 months in and I'm
regretting having the implant. I have severe muscle spasms, deep muscle pain all over, back pain is
horrible,and the battery seems to have shifted. the last visit the dr said the the stim was waking up
the nerves, which are damaged. going back to see if adjustment helps but I'm skeptical if this is all
going to be worth it.