Post: Boston Scientific spinal cord stimulator
Posted by Shawna McGuire on 10/22/11
I had a spinal cord stimulator placed in 2008 for severe nerve damage and pain in the right side of my back. I had it placed at Cleveland Pain Clinic. During the surg. when they were placing the stimulator my legs starting moving uncontrollably, and I was screaming with severe pain in my left shin. After in recovery I couldn't even think about my back pain from surgery b/c the pain was so severe in my leg. In short the Dr. did nothing and released me even though I was in sever pain in a place I didn't have pain before sx. My husband took me to hotel and the pain could not be controlled. I take Fentanyl Losengers 400 mcg and that didn't touch it. Called dr on call and said to take another Vicodin(prescribed for pain after surgery). Next morning begged Dr to see me since we live near Rochester NY. Saw me with NP and my husband kept asking if a nerve could have been pinched, Dr over and over said "surgery went perfect!!!". I said hysterically crying "surgery did NOT go perfect" I came out of surgery worse then when I went in. Dr was saying unbelievable things like maybe it was from my pain med that I have been taking for 4 yrs. Finally he said what medications do u take. I said you just did surgery yest and don't know what I take. Anyways I told him and one of them was an antidepressant I have taken since I was 15yrs old. As soon as I said that he said "where you approved for this surgery?" since you have to have a pyscological evaluation and be approved. I almost fell off the table. He was implying I was crazy bc of my antidepressant. It was so obvious his NP said "he doesn't think you are crazy". It was so horrible. So anyways he sent me for an XRAY to see if I BROKE MY LEG!! We went home and I sufford for wks. The pain died down though I still have nerve pain in my shin, but I was able to use the stim for about 2 months. One day I noticed something didn't feel right. Dr from Cleveland would not send me xrays so my dr in Rochester could exam to see if wires had moved so we didn't have to go back to Cleveland. I did have an xray from a wk after surg however so my Dr in Rochester took another xray and saw the wires had moved. I did not want to go back to Dr in Cleveland but no one else would touch me bc Dr in Cleveland placed it. After wires moved I also realized the battery wasn't the same. I was charging it alot more. Went back to Cleveland, told Boston Scientific Rep and Dr before surg that the battery was not right and asked if they could check or replace. No one checked or replaced. After 2nd surg had big bulge in my back which was not there after 1st surg. Went home and tried to use stim but it was not the same. The stimulation was not in the right place and was charging stim way too much. Again Dr would not send xrays to Rochester DR but my Dr in Rochester compared xrays from 1st sx and took new ones and saw that wires were not even in the right place. Did not want to go back to Dr in Cleveland. Boston Scientific rep found me Dr in Rochester who could see me. Went to him and he said that wires were not placed right and would re do sx again for the 3rd time. Oh ya, when they do the sx they do the whole sx and so i was opened in same 2 incisions everytime. Again I told Boston Scientific rep that battery was not right, pls check battery and if need be replace it, I new it was not charging right. Dr did 3rd sx, that went ok but after 3rd sx I was charging battery way to much. Reps were seeing me and just were saying it is bc you have 2 wires which I had had since 1st sx, but they never checked the battery. Finally after 3rd post op visit, the reps decided to check battery which was just having to hook my remote up to their computer. At this pt I was charging battery every 6 hrs, it would stay charged for maybe 4 hrs and then I would have to charge again which takes 4 hrs and sometimes the charger would die so I would have to charge that b4 my stim would get any charge. A wk later Boston Scientific rep called me and said the battery was dying and almost dead. I was so pissed. I told them b4 every sx that it was not right. I asked why they didn't check or replace b4 the other sx's and she said"cost" the battery is $25,000.00 I couldn't believe it. Money is more important then me. This meant a 4th sx!!!! to replace battery. I did not want it but had no choice. This sx was supposed to only have to change battery and not touch other incision and wires. Finally had 4th sx. came out of sx. and rep worked on me for 1 hr trying to get stimulation in right spot. I all of a sudden had NO stimulation in the right spot, it wasn't even in the right side of my back. What the hell! My dr came in and I said, she has been trying for an hr to get stimulation in the right spot which that was ok b4 sx, and the dr said "THE WIRES MOVED". This is where I am at now. I can't use the stimulator bc the wires moved....
Posts on this thread, including this one
- Boston Scientific spinal cord stimulator, 10/22/11, by Shawna McGuire.
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